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Alpha-1 Foundation DNA & Tissue Bank

The Alpha-1 Foundation DNA and Tissue Bank, established in 2000 by the Alpha-1 Foundation, is funded by a grant from Fundacion Leopoldo Fernandes Pujals as a part of a matching grant initiative with the State of Florida. The Bank is housed at the University of Florida College of Medicine in Gainesville, FL. The Principal Investigator of this research project is Mark Brantly, MD. The Bank is a repository specifically for medical information (hyperlink to data points) and tissue samples (DNA, plasma, lung/liver) for alpha-1-antitrypsin deficient individuals, their family and friends. The Bank serves the international scientific community. Currently the Bank has the largest collection of DNA in the world for Alpha-1-antitrypsin research studies.

The Alpha-1 Foundation has established a Tissue Bank Advisory Committee which includes a wide representation of physicians, ethicists, attorneys, consumers as well as international experts in tissue banking. Collectively this Advisory Committee reviews requests for research. At this time the Bank has over 2400 members who have provided valuable medical and/or tissue samples.

MEMBERSHIP INFORMATION: The Bank is not actively soliciting new members. The current focus is furthering research with existing samples. However, individuals referred from the Alpha-1 Coded Testing Trial (ACT) or physician referral may enroll by contacting the our research staff at the University of Florida.

RESEARCH OPPORTUNITIES: For investigators interested in obtaining tissue samples with phenotypes from the Bank, please contact the Alpha-1 Foundation or our research staff at the University of Florida.

2010 Year End DNA TB Report
Questionnaire Data Points