Research in Alpha-1 Antitrypsin Deficiency is needed in order to better understand the disease, to understand what causes emphysema and/or liver disease in only some people with the condition, and to improve current treatments. Human subject participation in research is crucial.
The University of Florida Alpha-1 Research Program has developed a team of scientists, nurses, and administrators to conduct a number of clinical trials and other research projects for individuals who have AAT Deficiency, their family members, and other eligible participants.
A list of all of our clinical research studies at UF is available through clinicaltrials.gov.
The Alpha-1 Research Registry is a confidential database of individuals diagnosed with Alpha-1 as well as carriers of Alpha-1. As a member of the Registry, you will be notified of studies in which you may be eligible to participate.
Click the link below for a list of references for research participants at UF.